News from Brittany: So on Monday, October 27, Jace is going to be transferred to Northern California Childrens Rehabilitation Center in Campbell, Ca. This is a step in the right direction for him. This means that he will be in more of a home environment and more family centered care, which means families are in more in the fore front of all of his cares, learning to do EVERYTHING that he does and will need. This is like a transitional center, the ultimate goal of this place is to reunite families. This also means that Jace will be moving forward developmentally as well, since he has been on his back basically since he was born, due largely because he was too fragile to manipulate in anyway. Since his surgery, he has improved by leaps and bounds, according to one of his primary nurses. Sitting up, laying on his side without support, reaching for objects and so on. So what does this mean for me........well it means a LOT more traveling and being even further from home. I have found a place to stay that is closer to Jace for the first month during his transition to the new facility. From there I will be bouncing back and forth between family in Hayward and Santa Rosa. I am grateful that I have these places to stay. With that will come the enormous cost of fuel. I will have anywhere between 2-4 hours of driving per day. Thankfully I will no longer have the cost of parking. This is going to be a long road, that will hopefully lead us home..................something we have dreamed about for months. Nothing is ever promised, but with the faith, prayers and a strong willed family that NEVER gave up, we have made it here. Life is about to get a whole lot more complicated for the Halvorson family in every way possible. Physically, emotionally, financially and at some points spiritually. But compared to where we have been......I think we can make it. Thank you again for all of your support and prayers, you will never know what it means to us. just a thought I had the other night. I was sitting holding Jace, trying to rock him to sleep, watching the nurses tend to the other 3 babies in the room. I could hear the bells and alarms going off, and see the 2 nurses running around trying to maintain the chaos. As I sat there, for the two hours, not once was a bell, alarm or anything for Jace. This was a moment of.........awe you could say. No longer was Jace the one that the nurses had to keep a close hand to. No longer was he the one that everyone turned to when bells went off. He is finally the stable, happy baby in the room. I sat for a long while in that beautiful realization while holding him, able to breath a real breath for the first time in a long while. Now I know that this does not mean that we are completely out of the woods, but for that moment, that splendid time, I felt happy and hopeful for the future. Something neither of us have been able to look at in a very long time.
Posted on: Fri, 24 Oct 2014 14:11:56 +0000
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