Ok count down of my last 8 years. 2006. Got married. 2007 - got my dog Sadie and coco.My son graduated HS got a job and went to culinary school and then got his wisdom teeth and then almost went blind . 2008. - my son started to have siezures and this continue we found out he had a brain infection. 2009. My son continued having siezures and had to have iv meds daily., he even had one on New York city while walking around where the twin towers were. This was my first time actually witnessing his full seizure. We left NY and headed NIH. 2010 - my son had a brain biopsy at NIH. After that they offered him BMT. So he did it. And was cured of his cgd and mcleod 2011. HE Got Lympoma all over his body after is transplant. PTLD. HE SURVIVED this treatments. THANK YOU Stanford Doctors. 2012 we found out from all his chemo and steroids to save his life gave him Avascular Necrosis in all his joints. He went under various decompression and bone graphs in his wrists and ankles. Also from all the Rituximade to cure his GVHD and Lymphoma he c.f. will need IVIG for years 2 to 3 times a month so to keep his immunecsystem stable. 2013 -He almost died from the Adeno Virus. Thank you Stanfords again for saving him. 2014- SAME IVIG . TWO TOTAL KNEE REPLACEMENTS thank you dr. Goodman. I LOVE YOU SON WITH ALL MY HEART. I love my husband with all my heart also with out him I would of never made it. Hoping for better times for all of us to come.
Posted on: Thu, 01 Jan 2015 04:27:01 +0000
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