Ok, so, the Liberal Party promised that, if elected to govern, - TopicsExpress



          

Ok, so, the Liberal Party promised that, if elected to govern, they would put the life saving drug treatment for Pompe disease / Glycogen Storage Disease onto the PBS list making it available to the so far few but growing number of people with this life threatening condition, of which my sister is one. People. Friends. We need to make this election count! I will update with fundraiser details and petitions. Follow my sister, Catherine Jenner, and the Australian Pompe Association for updates on how to help. We have to hold them accountable to this promise. Then we get an island. Xxxxxxxxxxxxxxxxxxx
Posted on: Sun, 08 Sep 2013 07:37:41 +0000

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