On Thursday evening around 10 pm we got a call from the picu doc. She told us that Dylan had dropped his pulse-ox during his last feeding. All three had done so within 36 hours. She planned to stop all feedings and start IVs. The next morning (Friday) the neurologist was planning on meeting with a metabolic specialist from UW-Madison who was in Marshfield for the day. They met around 10:30am on Friday. He was not totally convinced that it is a metabolic condition. The team is now leaning toward a specific genetic condition responsible for energy production. We are waiting on some testing to come back next week to decide which further testing make sense. They started feeding from the bottle again too, around noon yesterday. They also started a new medication yesterday. Now we wait.
Posted on: Sat, 13 Dec 2014 18:34:47 +0000
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