On this, the final day of Epilepsy Awareness we are in shock and - TopicsExpress



          

On this, the final day of Epilepsy Awareness we are in shock and completely devastated since finding out tonight that this beautiful angel passed away today. Emma had Ohtahara Syndrome, a neurological disorder similar to Dravet Syndrome that saw her suffer from debilitating seizures. Her mom Rhonda is an amazing advocate for her daughter. This is every parents worse nightmare and I cannot even begin to imagine what this family is going through. These diseases suck and I am so sick of seeing kids seize, suffer and die. F#%k. F#%k. F#%k.
Posted on: Mon, 01 Dec 2014 03:25:45 +0000

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