One important piece of legislation in the rare community is HR - TopicsExpress

One important piece of legislation in the rare community is HR 2090, The Patient Choice Act. Introduced in 2013 by Morgan Griffith (R-VA), this act would allow drug companies to seek provisional approval of therapies in clinical trial testing that are adequately safe. Thus, patients facing terminal and life-threatening illnesses with limited treatment options would gain the choice to try a drug that could in fact have some efficacy. huffingtonpost/jonathan-agin/the-compassionate-use-con_b_5198727.html

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