Our contribution to Wobbly Wednesday from Australia! Cian plans to show this video at school on Wednesday and give his teacher and headteacher the information sheets. youtu.be/TJaOS4A0-VE Heres a little about why we did it: Cian was diagnosed with Nystagmus in 2008 when he was 3 months old. We have since visited numerous medical professionals and had various tests but no cause has been found. As parents we had a lot of questions about how it would affect him and how we could help but the answers we were given were limited. The last few years have been a big learning curve but Cian is doing really well at school with very little support, he loves to read and ride his bike – all things we were told he may not be able to do. At the moment, the main issues seem to be from a social perspective particularly when he is nervous, tired or excited. He struggles to make eye contact or being in unfamiliar surroundings. The Nystagmus Network has been a great source of information for us, particularly hearing about other people’s experiences. We wanted to do something for Wobbly Wednesday to help raise awareness of Nystagmus. Given our experiences so far, and knowing Cian would find it difficult to stand in front of his class and talk about it, we decided to make a video. Cian loves to draw and he decided he wanted to draw pictures to help other children understand what it is like for him and to show all the things he can do. It is hard as the parent of a young child who can’t tell you what they are experiencing, so we wanted to give a positive message to show it isn’t always as bad as you may be told. Our plan is to show the video at school, to friends and family and hope that it raises awareness. We don’t know what the future holds for him but will learn as we go along and support him the best we can.
Posted on: Sat, 01 Nov 2014 14:10:42 +0000
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