Our friend Hunter is, at 19 years old, in the first generation of - TopicsExpress

Our friend Hunter is, at 19 years old, in the first generation of survivors of Harlequin Ichthyosis. She appeared on the Katie Couric Show yesterday to talk about living with ichthyosis and did an incredible job! She is such an amazing advocate for ichthyosis and visual difference! (Also, Brenna kept pointing to Hunter on the screen, saying Hunter!! HIII!! :) Both kids were excited to see their new friend they just met a couple of weeks ago on TV!) https://youtube/watch?v=9CFl_qk96Jg&sns=fb

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