Our last Weekly baby Jaxon update on everything that so quickly transpired after the last weekly update we did: I started having contractions on the 9th. I wasnt able to breathe very well and so after calling my Drs office on Wed morning the 10th, they were very concerned about my breathing and suggested I go to labor and delivery just to be safe. After running tests and blood work, the results came back each time so off that it was thought the results were contaminated. I was put on oxygen, admitted for observation and their plan was to monitor my blood work and vitals overnight, and hope for improvement. On Wednesday they ruled out any blood clots in my lungs by doing a CT, and had also done an EKG and an echocardiogram on my heart. Come the next morning on the 11th, before we even knew of most the results from the tests done the day before, several of my other symptoms had progressed rapidly, and I was emergency air lifted to Barns Jewish Hospital. I had developed a rare condition called Mirror Syndrome in which a perfectly healthy mother adopts the symptoms of her unborn child. My liver and kidneys were shutting down, I was becoming very anemic, fluid was developing in my chest/lungs making me struggle for each breath, and edema all over my body. The morning of the 12th the doctors felt that there was no reasonable way to slow the onset, and they were left with the option to either wait and place my life into further jeopardy by continued monitoring or deliver Jaxon in order stop the progression of the Mirror Syndrome. In other words it was we could lose both me and Jaxon by waiting or deliver him at 24 weeks and pray for survival despite all his concerns. Jaxon performed well on ultrasound tests that checked for how viable an infant would be out of the womb, i.e. breathing reflexes, movement, etc. We were becoming a little more optimistic about an end result. In preparation for the emergency cesarean I was given two more units of blood to help with my anemic condition. During the surgery I still needed 3-4 units of blood (body holds only 5-6) additionally I was given 2 units platelets to help my body clot and reduce bleeding. Between my doctors and Jaxons, there had to have been 30 people with different teams in the room. Jaxon was born at 11:26 am 2 lbs 1.9 oz and they immediately began working on him while in the OR, he was too critical to be moved just yet. I remember hearing them announce the time he was born in the room. They called in several other teams trying to establish an airway in order to transport him to Childrens hospital. After several failed attempts an airway was finally established, but his oxygen saturation was still very low and his heart rate was lower than they would like, but he was finally being transferred to Childrens hospital. All this time they were still trying to get a handle on my bleeding- my epidural was wearing off some and I was becoming extremely anxious and so I was given some medicine to relax me which after given that I dont remember much. Next I remember being back in my room surrounded by several doctors, and after a few moments a doctor which I had not seen before made his way to us and basically blurted out hes expired in a well there you go, sorry about that and have a good day kind of way. This seeming insensitive delivery gave such an emotional blow that devastated Chris and I. We were and still are pretty numb from after having so much hope that everything was going to be ok - that he was going to be ok - that we were going to be ok, instead for it all to be over with so fast. He wasnt going to need this umbilical vein the moment after he was born, he had the steroid shots, he did well on the pre-delivery ultrasound tests.....why did our Jaxon not make it? While I did not get to see Jaxon alive, Chris did and that was a gift to him. I did get to say my goodbyes to Jaxon and those moments were captured by a God sent organization On Angels Wings. We did decide to have an autopsy done by the suggestion of Jaxons Drs. If we can have his little life bring any answers regarding anything in the medical field, to any other family going through this down the road, then his life will have helped someone or something and will be good. He is going to be laid to rest with my mom in her plot and his gravestone next to hers. For those that did not know my mom, she loved all babies more than life itself. Born babies, aborted babies, abandoned babies, orphaned babies, all babies and now he will rest with her. I go back to St Louis for my 1st post op apt next Friday the 26th. Due to rarity of the mirror syndrome along with the severity of what happened to me, my care will need to still be done in St Louis by the doctors that saved my life, and that are familiar with all that transpired over those traumatic few days. My recovery will be at least 6-8 weeks (normal cesarean recovery time) but perhaps longer depending on how my body heals inside and out. There is no foot too small that it cannot leave an impact on this world. We would like to welcome family, friends and everyone who has been by our side to a Memorial Service for Jaxon Donald Miller on Saturday September 27th 2014 at 3:00 PM at Greenlawn East. If you feel compelled to give, in place of flowers please know ANY amount will be used to put towards both Natalie and Jaxons medical expenses, the emergency air flight from Springfield to St Louis and towards memorial service expenses for opening/closing of faults, head stone, facility charges, etc. This will be of greatest help to us and can be done at any Bank of America account #: 3540 1122 5313. Or sympathy and support may also be sent to the family at 3199 W Aussie Ct., Springfield MO 65810. We have been overwhelmed by everyones love, prayers and support during this most devastating time of our lives. greenlawnfuneralhome/obituary/jaxon-miller Trust in the Lord with all your heart and lean not on your own understanding; in all your ways acknowledge him, and he will make your paths straight. Proverbs 3: 5-6
Posted on: Sat, 20 Sep 2014 23:42:51 +0000
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