Our last hospital dismissal happened last Friday around 10:30a. It was a strange feeling. It felt like it should of been a bigger deal than what we made it, but it just didnt feel like it was the last time. We rushed home picked up the others since Em & Gage didnt have school and headed to the Oakland pumpkin patch. They had soo much fun. Jace pretty much kicked back in his stroller only participating a couple times. I think he was just happy to be outside! Saturday after all games, we headed to a hotel. E, G & H had it in their head we were going to celebrate by swimming, even though Jace cant. Sad thing is he doesnt even care to. He sits on a chair and plays with his toys or just sits and watches the others in the pool. This time he did want to put his feet in. Short lived, but at least hes not scared of water. Besides not knowing the hotel was under construction, the cable going out and a live band outside our balcony door the stay was fun. Ha! Jace had a harder time transitioning back to his bed after this hospital stay. Hes usually ready for his own bed and we had to let him sleep with us a couple times. So glad hes back in his own bed now! Monday we went down to Childrens for a follow-up. First time in a looong time he started crying when they called us in. He didnt want to be weighed (he lost weight from Friday), measured, blood pressure, etc. Nurse Heidi walked in with a bag for a urine sample. He started crying again and saying no no. I asked him if he wanted to sit on the toilet and he said yes. Sure enough, we went in there and he went! His urine showed a trace of blood which is another side effect of his treatment. We almost were allowed two weeks away until this discovery. Well be back next week. He toughed through a dressing change narrating the process and items used. He is a hoot to listen to. He was green lighted to start Accutane on Monday, popping his pills with no issues like hes been taking pills forever. Tuesday we went to Bergans volleyball game which supported Jace and pediatric cancer. What a great night. He was so good allowing a team picture and all. Thank you Bergan and Mrs. Nielsen!! His last Gmcsf shot was today. Poor guy still isnt a fan of those. He was crying crying crying wanting to squeeze my hands. I wish he really could understand that was the last series. Hes eating and drinking so well and seems fairly beefed up. Julies been keeping him busy during the week. They are always doing something fun. He loves all the fun activities. Tonight he was ready for bed at 6:30p...absolutely exhausted! Its a great feeling not thinking about our next stay. We are all trying to get used to the concept:) The switch for all of us is a challenge...both parents here, little brother home, back to work, Jace with a babysitter, etc. I cant wait to keep this routine without any breaks. We are so grateful for the continued support and extra prayers. We hope each day gives Jace more strength to continue his fight. He continues to make our hearts smile and amazes us with his progress!
Posted on: Fri, 24 Oct 2014 04:24:31 +0000
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