Please go on your own facebook Wendy Leach Marshall has shared a story from the BBC about eds . these are the problems karianne is having her spine is so unstable and no doctor can help her . Her jaw is now dislocating my kids are not getting heard . they are deteriorating In front of my eyes and Im stuck .all this is not happening fast enough with the health secretary . Im so scared . She is unable to talk drink and eat properly at the minute . This condition is breaking my heart and theres no light at the end . This professor Graham needs listening to by all medical professionals . Im sorry for being sad today its extremely sad to watch my babies like this . We go to one doctor next Tuesday they are going to talk about Emily they want to stop her eating and drinking all together because she aspirating when eating and drinking that means her swallow isnt safe and the food and drink is going into her lungs. she having chest infection all the time because of it. She will have to feed buy the feeding tube in her tummy only there forgetting its still infected and still needs to be operated on to change . They need to help my family not stop the normal things in life like eating and drinking.xx
Posted on: Wed, 19 Nov 2014 08:19:09 +0000
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