Please note, this post is EXTREMELY emotional. We will get back and respond when we can. Rylee needs prayers! October 17th, day 42 listed for transplant. I spent this day uncontrollably crying. ALL day. Coming to terms that Rylees heart could no longer support any part of her body. Even the machine, ECMO, couldnt continue to keep her alive much longer. Rylees body was failing, she needed a miracle now. She needed anything just to stay alive. We were facing reality that Rylee probably wouldnt make it through the weekend without a new heart. No parent should ever have to know what it feels like. I was up until 5am, crying, holding her hand, and singing to my princess. October 18th, day 43, I was woke up this morning by our amazing surgeon. 9am, no coffee, and teary eyes from the long night before, I was told we had an offer and we wanted it. Sit tight and wait until we know more. So we wait, wait, wait, wait some more. Could this be it? 10:54 am my phone rang. I got a call from our team. Theyre going for it. Wait some more. We werent given any information on the donor. We have no clue where or when the surgery would take place. Labs started going, and we waited some more. Finally 11:13 pm DR. Velez walked down the hall. Be ready to go down at 11:45pm This was it. Panic, fear, excitement, and being numb sunk. Weve been close before, never this close though. October 19th, day 44, transplant day 1. The surgery was hard, really hard, but it went faster than expected and her new heart started right up. They prepped her to come back to the room. While lifting her she coded, more than coded, her new heart just went still, the team put her back on the table. Found the problem, addressed it, put her back on ecmo, and she came back to life. We are now in a VERY sensitive recovery period. Rylee is having a extremely hard time adjusting to her new heart, we have her on a EEG incase she has any seizures from her newest arrest, she is on ecmo, more meds than ever, and her body is still fighting to stay alive. But this is a fight we can finally help her with. We ask for prayers for Rylee as she continues to fight. Prayers this miracle will last. Prayers for our familys strength. But mostly prayers for the Donor Family. Words cant express our emotions. We may never express our emotions correctly or as accurate as wed like. We will forever cherish this time in our lives and every day forward. These photos are a cluster of our before surgery, walking down, waiting, anesthesiologist, our surgeon, and post transplant.
Posted on: Mon, 20 Oct 2014 03:41:47 +0000
Trending Topics
Recently Viewed Topics
© 2015