Please read my long post, friends! :) Most people have never heard of Myasthenia Gravis. One year ago I was diagnosed with this auto-immune disease. I had no idea what it was, and now it is always present in my thoughts. My symptoms are ocular and bulbar - which means that it affects the muscles in my eyes, mouth, and sometimes my breathing and swallowing. Many things can make it worse - exercise, stress(!!), heat or cold, hot showers, altitude etc. Fortunately, prednisone works well with me. Some of my friends have generalized MG and it affects their entire bodies. Many have had surgery to remove their thymus glands and must have IVIG or plasmapheresis to be able to function. Some of them are in wheelchairs or cant drive. There is a reason Im sharing this. Im taking part in the first MG Walk to take place in Utah. This is exciting for me and my fellow MGers because it means that more people will learn about this disease. It means that funds will be raised for research. I honor these new friends of mine. Daily living is a challenge and yet they will be at the walk as well. Please consider supporting in one of the following ways: 1) Donation! See my team page. For every $30 donation, Im offering a personalized wreath or candy jar. See photos in the comments. 2) Walk with us! The walk is next Saturday, September 20. We are few in number, because this is a rare disease. But we are a passionate bunch. At least when our muscles allow us to be! :) 3) Read about Myasthenia Gravis! Do a quick google and become aware. Thank you friends! join.mgwalk.org/SLsnowflakes
Posted on: Thu, 11 Sep 2014 23:45:53 +0000
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