September 25, 2014 I saw the Lung Dr today and my lung is damaged. They did the walk test with me to see if my level drops further. It was staying the number it was. The nurse told me Deb bend down like you are getting something off the floor. The moment I did my level dropped to 88. I became very weak suddenly just like at home. I was having times my level was 84 now I know why. This was an ahh ha moment I told her. This is what is making me so weak, yes she told me. When I go in the dryer and bend down to get clothes out of it, it is so difficult to breathe and I have to hurry and sit down. Anything I do bending drops my level. So glad I know this. I was told with getting the oxygen 24/7 I would gain strength and feel so much better! No more of having to go to my bedroom and use the oxygen till I feel better and go do something then back to the bedroom. All makes sence to me now! Yay! You know how when your car is acting weird you take it to the shop and it runs fine? My body did not act fine. The low oxygen saturation was 90 when I arrived there. Dr looked at all the CTs, ex-rays and whatever else reports and said my lung has been damaged by radiation! I knew it. I told them they were hurting me and they said radiation does not hurt. Remember? One day I hurt so bad leaving there and I wondered are they giving me to much? The next day they called and told me not to come, the machine is down. Heart Dr told me radiaiton hurt my heart. Now lung Dr told me this hurt my lung. Blood Sugar Dr told me it hurt my pancreas. Tomorrow I have an ultra-sound on my thyroid. After the chemo there was no sign of the cancer. They said of radiation they had to make sure it would not come back. Really? I was a bit shocked to ask any questions of the lung Dr., today. He will see me in 3 months, sooner if I run into anymore trouble. I will be getting a portable oxygen concentrator. Dr told me they will try and give me the cylinders, but he says no! You get the small machine to become friends with. I told him I have times it is hard to breathe and I may cough a bit, use the neb to help me breathe better. Then suddenly I blow my nose and a big bloody looking scabby thing will come out the nose. It happens almost daily. I thought this was healing. I thought my lung was just getting rid of what is in there and just expelling it. He said I should not be blowing anything bloody from my lung or nose. He said if this is still happening he will have an ENT look at everything then he will scope everything himself to find out why this is happening and if I have a slow bleed inside. That may account for the enemia getting so much worse and the 2 blood transfusions so far since June. I have been thru such a storm this year. This storm has blown my house down. It has done much damage. My anger raged, my hostility was at an all time record and the problems keep piling up and now oxygen 24/7. BUT! I am thankful! I watched and felt my oxygen level slowly dwindle down since Aug 23. I keep very accurate records. I Thank God for the oxygen meter I bought recently. I want to be on the other side of this with; a better quality of life, a changed attitude and perspective, my postive back, my joy of living and want to smile with a happy face. That will happen after I get new teeth that were lost during my last hospital stay. Talk about humiliating, walking in public putting my tongue under my upper lip to hide. I can do this and I am! :) I want to be relaxed and remain calm and not take everything so serious. I want to be compassionate with kindness to everyone I cross paths with! I want to be a magnet people are drawn to. Yes I do!
Posted on: Thu, 25 Sep 2014 20:25:14 +0000
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