Since there have been 1100 (yes 1100) new members added today (and since we added them, there are over 200 more new requests!) - Welcome to Lyme Disease Awareness! We are committed to providing a safe and supportive space for Lyme patients and their loved ones to network. Please take a moment to read the group rules and information below before posting. Thank you for your commitment to raising awareness and to keeping this community a safe and supportive space! ************************** LYME DISEASE AWARENESS RULES: 1. Do not post doctors or health care professionals names or contact information (including, but not limited to: clinic names, websites, addresses) to the group. To respond to someones request for an LLMD, send them a private message. 2. Please refrain from posting links to fundraisers or merchandise sales unless the company is a Lyme-related registered not-for-profit organization or if it has been pre-approved by an admin via private message. Please understand that we cannot endorse personal fundraisers as we have thousands of members in need of financial support. 3. Understand that everyone responds differently to various treatments. What worked for you may have no effect on someone else. While we encourage you to share your stories, please do not promote any single cure and be respectful of others treatment protocols. **Remember, if there was a singular cure, no one would remain chronically ill. 4. Practice Respect. Foul language and disrespectful or rude behavior will not be tolerated. ***Posts that violate these rules or contain content unrelated to tick-borne infections will be deleted. The admins will PERMANENTLY BAN members who repeatedly violate these rules.*** 5. Seeking a Lyme literate physician? - Post a request w/ your location to the group. Others may respond via private message. - Go to the Lyme Disease Associations website (lymediseaseassociation.org/) and click on doctor referral. - Send a message to the Lyme Moderators account with your location and they will do their best to help you. Please understand that response times may be slow as the moderators have full-time responsibilities outside of this group. ***Lyme literate practitioners risk their licenses and livelihoods to treat patients with tick-borne infections. To protect them, we will delete posts which include their names and contact information.*** ************************** NEED TO CONTACT THE ADMINS? Send a message to the Lyme Moderators account or email lyme.mods@facebook ************************** WHY IS THIS AN OPEN/PUBLIC GROUP? Lyme Disease Awareness was created to spread awareness for Lyme Disease and tick-borne co-infections. To honor this mission, it was created as an open group to educate as many people as possible. The group has always been and will always be an open/public group. We have thousands of members. When a group grows this large, the admins lose the ability to change the groups privacy setting, so we would not be able to make this group private even if we wanted to. We encourage members looking for privacy to seek smaller, private groups dedicated to support rather than awareness. However, we hope you will also remain a member here in LDA. We are proud to provide a space for thousands of people to learn about tick-borne infections, to raise awareness, and to network with the Lyme community here on Facebook. ************************** OUR MISSION STATEMENT: #1. To raise awareness of the Lyme Disease and co-infection epidemic and to educate people about late-stage, chronic Lyme Disease. #2. To prevent new cases of Lyme Disease by educating about protection from tick-borne diseases. #3. To provide support for chronic Lyme sufferers and their caregivers. #4. To provide educational materials and resources for those interested in learning about the disease.
Posted on: Sun, 26 Jan 2014 15:30:27 +0000