So I may have some good news. They may have found a diagnosis. We will be meeting with some cardiothoracic surgeons tomorrow and several other cardiologists to see what all testing they want done before we do some and have to repeat them but they think she is potentially part of the 1% of kids whos aorta grew to the right of her chest instead of her left. This causes compression on her esophagus and cause difficulty swallowing, feeding, breathing. Pretty much every symptom that she has. Hes not sure if there could be more abnormalities until we do the CT scan and further testing. This all has to be confirmed but hes really confident this is what shes got. How crazy this was all found because of one last little swallow study that was ordered before her feeding tube surgery. Maybe all the prayers are working! Hopefully more answers tomorrow!!
Posted on: Mon, 21 Apr 2014 22:43:40 +0000
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