So I want to share some about my surgery so you all can have an understanding of what to expect.... The surgery is an extremely long one. I was told upwards of 14 hours. I got this and am ready!!!!! Gratefully, for the first time in my life they have found an anesthesia that works well with my body. Of course it is One of the most expensive anesthesias they use. ...only the best right ??? The good news is I can be on it for up to 24 hours.... The surgery is long because it is a tedious process..... They will be putting a mesh behind my airways. Getting there takes a lot of shifting parts around. The mesh is very soft....think a soft cotton with lots of holes in it.... They have to hand sew the mesh to the back of my entire airway starting in the trachea and going all the way down both bronchial tubes but its not a straight shot so thry constantly have to maneuver my parts . I will wake up with chest tubes and they told me I will not be breathing better when I wake up, in fact, I will feel worse because I will just have endured a very long surgery, my airway is going to be swollen and the mesh still soft.... It will take time for my body to adapt to the mesh and for it to hopefully harden up.....as the mesh and my airway become one, the mesh should harden and pull my collapsed airway back,creating an airway that is open. I will spend some time in the surgical ICU and then go to the chest disease unit. I have been to both these places already and they are amazing there, Everyone is very pleased with my determination and motivation and feel it will be a big help in recovery. I have to stay here for up to a month post operatively. They have worked extensively to cut my infections, support my Addisons disease. They really havent left any stone unturned. Did I say THANK YOU for bringing me here???? This is so surreal ...all my years of suffering, of researching. Of unanswered questions have vanished. I LOVE BOSTON and HARVARD! My dad and step mom Pat will be here for my surgery, they are not Face bookers .....so my mom will be updating the day of my surgery under my account, as me! It is expected to be long so dont worry. I am so ready for this. Of course I will be back on FB ASAP and be typing incoherent love notes to you all under my drugged self because well thats what I do. Since landing here in Boston, I have never felt more medically understood in my life. I cant wait to go home to my pulmonary team and hug them all, thry have been tremendous to me ..supporting me as I searched for help. Thanking God that in FIVE DAYS I will start my journey to heal .......
Posted on: Fri, 03 Oct 2014 21:53:41 +0000