So as most know we have been in hospital for quite some time - TopicsExpress

So as most know we have been in hospital for quite some time trying to figure out what is wrong with him.Well today we found out he has a redunted colon,which is generally not a huge deal alone but they are 99% sure he has hirshburgs disease only way to 100% diagnose that is with a biopsy which is also USUALLY a super simple procedure they keep kids awake for BUT with Xanders heart they have to put him completely out for it. And ansteshia has proven twice to be really BAD on his heart he will probly be intubated for awhile.Also if he does have this he will need a major surgery.Also he is only eating 60% of the lower end of his goal so a feeding tube will be started but he cannot eat until after the biospey tomoro.The results usually take a day but o ya its CHRISTMAS !!! and yes we will be here.We might come home for a few hours to see family but it will strongly depend on what all happens tomorrow !!!

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