So some of us Spectrum Superstars parents/carers choose to speak openly about our childs autism/special needs and some of us dont. There is no right or wrong thing to do, each family does what they believe is best for them, their child and their family. I myself & my husband have chosen to speak openly about Jaydens autism, and we have chosen to do this for several reasons. Our main one being we dont want Jayden to think that having autism is a bad thing, as it is not. Sure there are sometimes that I hate it, I hate how hard it makes his life and there has been times where I wished he didnt have it, but the reality is that he does, and nothing is going to change that. I dont want my son getting to a point in life where his is wondering why he is different and questioning himself or feeling bad about himself, because he should never have to feel that way. Another big one for us is we dont want his 2 brothers thinking that Jayden gets away with or gets more attention than them & that their brother having autism is OK, its is just like me having athsma or someone wearing glasses, just something that he was born with, and we have to work out ways to help him when he needs it. To his brothers it is an explanation as to why Jayden needs to chew on things at times, why he gets upset and frustrated easily, and why he needs an extra teacher at school. We openly use the word autism in our house, it is not used as an excuse for anything, it is something extra that Jayden has been born with, something that he has to learn to live with the best way that he can. We also want our family, friends and people in our community to understand Jayden, his uniqueness & his needs. Lets face it we are all human and without intent we judge others on their actions. I dont want this for anyone especially my son, and over the years we have learnt that if we explain to people around us about autism and how it affects Jayden and can affect others, people are much more understanding and accepting, and that is the type of environment I want for my son and if that means I need to explain his autism for the next 20 years then so be it. I know you are not all going to agree with me and my decision, but it works perfectly for my son and our family. Have you told your Spectrum Superstar that they have autism/special needs? Do you tell others? What is your story?
Posted on: Wed, 22 Jan 2014 22:11:23 +0000
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