So today Paxton spent his first full day with his carer....I get a - TopicsExpress

So today Paxton spent his first full day with his carer....I get a call just before 3:30 urhhh paxton pulled his tube out so I called daddy who had not long after, arrived home and i said try feed our paxy instead of popping the tube down straight away please! ....daddy fed him solids & Pax even drank a bottle-orally approximately 55mls!!!!! Boo yeah! He is astounding me!...piccies of pax without the tube ;) Tiny steps forward is still LEAPS in the right direction!

hooray for the healthy folks still able to make things happen and

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