Sorry everyone! I accidentally posted the links to the article I was talking about in my last post on another post! Oops! So heres another excerpt. The second paragraph holds amazing news that I want to look into a little further. This would force more collaboration between the countrys research groups. David Goldstein added, “It’s not an overstatement to say that there are inherent conflicts of interest at work.” Daniel MacArthur, a genetics researcher at Massachusetts General Hospital, is even more blunt. “It’s an enormous deal,” he told me. “And it’s a big criticism of all of us, but it’s a criticism we all need to hear. The current academic publication system does patients an enormous disservice.” The National Institutes of Health is taking steps to promote the sharing of genomic data about rare diseases. In January, the agency awarded nine million dollars to researchers at Harvard Medical School to coördinate a nationwide network of centers for rare diseases. Each center will mirror the type of work being done by the N.I.H.’s Undiagnosed Diseases Program, in Bethesda, Maryland, and each will be required to share its data with the others. Kohane, who develops software to make it easier for institutions to share information, will organize the initiative. “It’s creating an ecosystem that I think represents the medicine of the future,” he said. newyorker/magazine/2014/07/21/one-of-a-kind-2
Posted on: Sat, 26 Jul 2014 12:36:19 +0000
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