Thank you family and friends for all the love and support for mickey with the ALS ICE BUCKET CHALLENGE!!! Its been a huge success! And donating to help find a cure! Couldnt do it without yall!! Team Mickey is up and going! We ask for your continued support and donation to Team Mickey and The ALS Association of Tenn. Team Mickey will be at the Walk this year at Lipscomb saturday September 27th. I will be there to gather everyone together for the Team ! My mom is going to try and be there, but Mickey will cheer us on from home. Traveling is still difficult for him. Who knows, we may Scype or Facetime him so he can see your smiling faces :) After the Walk we invite you to come on up to the house to visit with Mickey and munch on a snack ! PARTY!! Mickey has had this disease for 7 years! And although it has caused him to be paralyzed from the neck down, he can still feel everything to the touch every pain every ache, the nerves are pristine.. hes never not once been bitter or asked why, his faith has never been stronger and has been an absolute joy considering the circumstances to have in my life! I love him like hes another father and he has been an inspiration to me. He can still chew himself and talk very well, the slow moving of this aweful disease has been a blessing for what its worth. And although my mom is his hands 24/7 for a simple head scratch or a chew to bathing clothing eating, we try so hard for him to have his independance! my mom is an absolute angel for doing what shes doing. Love you both to the moon and back! We feel so blessed this year! He did well with the feeding tube, survived a pressure ulcer in record time, received the incredible Tobii Eye Gaze system , alternating pressure cushion for his wheelchair, new patient lift with sling,( we wore out the old one), suction machine, cough assist, BiPapp, and has the chin control for his wheelchair! He also has Home Based Primary Care from the VA. The DRs. nurses, etc. come to the house to see Mickey giving him the best care possible. All of Mickys equipment was paid for by the VA but we have ALS friends that DONT have this support. They rely on the loaner closet of The ALS Association of Middle Tenn. The equipment needed to make sure they can have an independent life is very expensive!!! Caregivers need the Respite Care program they help with. We need the continued RESEARCH The ALS Assoc. does to find a CURE !!!! Alstn.org team mickey Mickey Vielmetti Leanna King Kulas Jeffrey Eugene Kulas Eugene S Kulas Pam Kulas Vielmetti Tim Vielmetti Shelley Vielmetti
Posted on: Sun, 17 Aug 2014 20:14:11 +0000
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