Thanks very much for adding me to this group. My husband was - TopicsExpress

Thanks very much for adding me to this group. My husband was recently diagnosed with neurofibromatosis- we dont know much about it and didnt get much information from the doctor. We will be seeing a neurologist in October. An MRI was preformed showing numerous Tumors inside a just small area of his midsection. We have been told more MRIs will be preformed to see if/where others are located and our next steps. If anyone is able to point us in the right direction for getting some information on this disease, maybe someone can share a story, or any personal advice it would be greatly appreciated. Thank you :)

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