The Pierre Robin Sequence Foundation (PRSF) is a Registered (126-590 NPO) South African based nonprofit organization that has been established to support families and individuals affected by Pierre Robin Sequence (PRS) and its associated syndromes worldwide. Our main objectives are to create awareness of Pierre Robin Sequence and associated syndromes worldwide; To work in collaboration with other organisations that mainly deals with children’s health, welfare, transformation and education; Our priority and focus would be to provide the financial assistance for children requiring facial cranial reconstructive surgery who would otherwise not have the means to do so. I started this foundation to create awareness for the PRS as my son was born with the condition in October 2008. Pierre Robin Sequence or Syndrome (PRS) is a condition present at birth, in which the infant has a smaller-than-normal lower or set back from the upper jaw, a tongue that falls back in the throat and obstructs the airway, and difficulty breathing. Most infants, but not all, will also have incomplete closure of the roof of the mouth (cleft palate), and is commonly U-shaped. PRS is rather uncommon. It is classified as a rare disease. Frequency estimates range from 1 in 2,000 to 30,000 births, based on how strictly the condition is defined. In contrast, cleft lip and/or palate occurs once in every 700 live births.
Posted on: Thu, 27 Mar 2014 20:36:45 +0000
Trending Topics
Recently Viewed Topics
© 2015