This WSJ article discusses the recent emphasis the FDA is placing - TopicsExpress

This WSJ article discusses the recent emphasis the FDA is placing on the patient perspective in drug development and clinical trial outcomes, and how patient advocacy groups are actively involved. Families of SMA has a number of initiates in this area. Please see fsma.org/LatestNews/index.cfm?ID=8807&TYPE=1150 and fsma.org/LatestNews/index.cfm?ID=8521&TYPE=1150 to learn how you can provide your input on the clinical trials process too.

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