This is my ten year old daughter, Isabel. She was diagnosed with - TopicsExpress



          

This is my ten year old daughter, Isabel. She was diagnosed with SWS when she was 8 months old. Shes had five laser treatments and will have another in June. Isabel has a venous anomaly, which they thought a few months ago, was a Arterio - Venous malformation, which would need brain surgery. The left side of her brain has no oxygen or blood flowing through it. (Very strange to see in a angiogram.) Isabel has self esteem issues because of the port wine stain, as well as her cognitive disabilities. Shes been on carbamazepine since she was an infant. She had an episode of status epilepticus when she was 3, which put her in the hospital for 3 days in another state. Everywhere we go, everyone compliments her on her beautiful red hair.
Posted on: Sun, 04 May 2014 02:02:29 +0000

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