This morning, we took James to see Dr. Santos, a pediatric ENT. The news isnt surprising, but is still upsetting - James needs tubes in both ears and needs his adenoids removed as well. As it turns out - and this part WAS a surprise - he has a moderate hearing issue in his left ear, but very little ability to hear in his right. Thats why, despite the fact he repeats everything and knows tons of words, he pronounces them incorrectly - hes not hearing much, and when he does hear it, the words sound muffled, as though theyre underwater. :/ But with the chronic ear infections and sinus issues, this is the best way to go. Dr. Santos wants James to have surgery within the next 2-3 weeks, so now, I have to wait to hear back and find out what insurance will cover (that makes me nervous, too, but this is my baby - well figure it out). Then, a date will be decided for mid-April. In the meantime, James is back on medication until surgery, because there is so much fluid in his ears, and he keeps spiking fevers. I truly hope this surgery helps - luckily, it is outpatient, and is usually very successful, but the thought of my 2 1/2 year old under anesthesia makes me understandably nervous. On top of that, in two hours from now, Im going to hear from my endocrinologist that I need radiation again. After that has been completed, I need a hysterectomy. I have no idea when I will have time for any of that, and I have no idea how we will afford it all. But without those procedures, Im going to have continuous life-threatening issues. Still, my treatment WILL be on hold until James is okay. He is top priority. Im a little stressed out, to say the least. Any good thoughts, vibes, prayers, or whatever you can send would be more than appreciated. Our family has had a very rough 12-18 months. Honestly, weve had several rough years, but were fighting to make sure things are as stable and happy as possible. (Disclaimer: I know people usually mean well when they say, Dont worry, this is easy, it will be fine, but Id ask for people to not say that. The last time I heard the words dont worry, this is simple, I ended up with more than just a simple kind of thyroid cancer, and it felt very demeaning to go from this is easy! to you should have been better by now. So - yes, good thoughts are appreciated, and I know I have wonderful, loving, well-meaning friends who would NEVER insult my family and who want to help. But please - no platitudes. No this is easy. Its not easy to watch your child suffer and go through anesthesia and surgery. But I do thank everyone for kind and loving thoughts. I am SURE James will be okay - better than okay. Hes a strong, smart, resilient, loving, amazing kid. But for now, one day and thought at a time. Thanks for understanding.)
Posted on: Fri, 28 Mar 2014 17:22:26 +0000
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