This post will be longer than the usual postings we see but its a really great read. What made me want to post this?! Talking with other people that have Lupus and knowing what we go through and deal with on a regular, I figure why not. Whether your battling with Lupus or not, maybe even a loved one or friend is, You just never know who may have needed to read it. But really... What also inspired me?! It was seeing a post from a friend thats also battling it. But like the rest of us, she is strong & GOD is good!!! -It will impact not only your health but your lifestyle as well. Lupus can create physical changes, mental health challenges, and affect your Personal Relationships. It may be frustrating to feel limits and setbacks, but know that there is a lot you can do to manage lupus. - Now, fatigue with Lupus is not only unpredictable but can be maddeningly hard to describe. Some people think of fatigue as simple tiredness, when that’s not it at all, as you know. How many times have you heard, “Just push yourself a little harder?” Try getting out the house, you just dont want to... And so on and so forth. - When asking myself or others to explain what lupus fatigue feels like, they make comparisons. “Fatigue feels like a heavy stack of metal sheets sitting on my chest, said a young woman. Its like an extremely heavy force that she cannot move, no matter how hard she tries. Others say that the fatigue of lupus feels like they have been drained of all energy (✋guilty ) as if something vital is suddenly missing. No matter how hard I try, I just cannot get out of bed, and I really want to. I feel limp like a rag doll or a puppet whose strings have been cut,” says another. - Regardless of how we may describe fatigue, one thing remains constant: it is not about lack of effort. On top of fatigue, there is so much more to deal with (aches, pains, low immune system) I mean sooo much more... And yes Its very tough bc we don’t usually look sick which makes it hard for friends and family members to get” just how wiped out we really are. The best way to deal with those who misunderstand.... Education.!! – So... Just always (If family/friends are not available), do some reading, try to laugh as much as possible while doing as many things that make you happy.... Now Practical ways: keeping all doctors appointments, taking medication as prescribed, eating well, getting enough rest and importantly listening to your body . . . There is also one important thing to note, YOU ARE DEFINITELY NOT BEING LAZY. – It actually feels good to know that there are so many others who can relate and knows what Im going through. I feel like Im not alone and they wont think that Im crazy, annoying, acting like a brat or being dramatic. They may also be able to relate to my mood swings, feeling down, depression, or me having the ugliest attitude or snapping on people for no reason at all... & Being that its mostly done to those who I love the most and those who are closest to me... in the end, it truly just breaks my heart. I just pray daily for myself and all of you who share this disease, hoping for a cure to put away this nightmare forever. God Bless💜 MsKay Favorallyearlong Harris Trudy Trahan Carol George-Perry Lisamaye Fightinglupus Andraisingawareness
Posted on: Thu, 07 Aug 2014 17:43:13 +0000
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