To all caregivers of children with HD, Please help, by taking 5 minutes to complete this survey. I know that most of you are looking to improve resources for families living with HD. Here is our chance as the doctors and nurses at Winnipeg Children’s Hospital have that same goal. I have offered to post this survey to help them gather the information needed. Now we need your help, please click on the below link to complete this 5 minute survey for our project titled “Shit Happens: An integrated knowledge translation approach to address knowledge gaps in Hirschsprung’s Disease.” Your time could make a big difference. “For a child and family living with Hirschsprungs disease the idea of ‘Shit happening’ tends to bring feelings of joy and relief while many of HD Children suffer from chronic constipation and occasional bowel obstruction. When bowel movement finally occurs it is not for the faint of heart…hence the name. Laugh or cry…may as well laugh!” reachhd.org/caregiver-survey-1/
Posted on: Tue, 19 Nov 2013 22:49:54 +0000
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