To all of my family and friends who may not understand.....Please - TopicsExpress



          

To all of my family and friends who may not understand.....Please read....I have fibromyalgia. Its not a joke, its not easy to live with, its very very very misunderstood. If u care about me at all please read....and PLEASE UNDERSTAND. I dont expect and dont want your sympathy...just your understanding and honestly , your patience. I am in pain often, I am tired ALL the time.... but I find lately having to explain why I do what I do......I easily get confused. I sometimes need to be told something more than once. Sometimes I need you to tell me the same thing every day for weeks or months.And even then I may ask you the same question again. Im NOT stupid. In fact I graduated #1 in my class at marywood university......but that was several yrs ago and my fibro has gotten worse. My mind gets confused. In fact ive already read and RE-read what i wrote and had to go back and re type words because i got the letters or words reversed. Fibro is a neuro-transmitter disease and it reaks havoc on its victims. AGAIN...I am a strong person and dont want anyones pity , I JUST NEED U TO UNDERSTAND! If I appear disintersted....im not! Im probably in pain and exhausted......if i say I cant do something its because I CANT.....not that I dont want to. ... noone can possibly understand what this feels like unless u have it and I would never wish that on you. Just please understand....one thing is the worst. ... One day I may be able to dance and the next day not....one day I can work...and the next day not...one day I can shop and the next day NOT....I never know when I might get a flare up....so if I say im not feeling well please dont say oh is the fibro acting up?: YES I know u mean well but YES>>......Its a sickness....a disease....a syndrome...call it what u might, its a reality in my life...just TRY to understand. I never had a deadly cancer so i dont kn ow that fear and neither do you. I have never been deaf or blind or paralyzed so I DONT know that feeling and neither do you . And u never had fibromyalgia......so dont judge me. Im NOT lazy, im very hard working when I can be because its the Godly thing to do. And im not a baby....ive been in more pain than u can imagine and im not stupid. My neaurotransmitters are misfiring and I have no control over that so dont think otherwise. One of the best things a person can so is to try and put yourself in another persons shoes. Do that and your ahead of the game . Thanks for listening.
Posted on: Thu, 15 May 2014 20:36:15 +0000

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