To my new dear friends at Highlands. Here is my update from my doctor visit today: Thanks for your prayers! Home. Feeling like I have been sucker punched. I could cry a river right now. But, thank goodness for my faith and for miracles . They have gotten me thusfar...Surgery is a definate on the near horizon. Couldnt be done today because the respiratory infection has throat swollen. Cutting would only cause more swelling which would almost guarantee a tracheostomy. When infection has cleared, vocal cord polyps will be removed surgically and my voice will diminish yet some more. Second and possibly most disturbing of issues is the level of my stenosis. Windpipe stenosed further from 65% or 70% open down to 50%. There is no cure for TS. Very misunderstood. Very few patients and very few doctors.. Quality of life will diminish some. Possibility of a tracheostomy....forever , no matter what. Oxgen and Cpap to sleep and breathe. Looks like I will have to go back into fight mode now. Thank goodness for my faith. Not sure how I could have made it this far nor how I can continue without it. God is my strength. A very present help in times of trouble. I do have hope. Just a little today....but I have hope. I will have a little more tomorrow. This battle has gone on since 2008. Started with double pneumonia, ARDS, Internal MRSA, Sepsiis, near renal failure. Now diabetic. In an induced coma for 90 days....should be dead...should be brain damaged. (maybe I am a little ..haha). hospitalized for 120 days to wean off the ventilator and to learn to walk , drive, cut meat, you name it again. So many surgeries....since...too many to count. Had a good two year remission period thanks to a cartilage graft that was put into my windpipe that wasnt meant to be forever and it appears another downhill slope is in front of me now. Unless, I recieve more miracles....they happen. I am living proof so far and my heart is still beating so God still has something planned for me. I might be a mute...and I like to talk. I may yet again have a new normal to face. I may have to have a trach forever. That is disheartening. Bit., it could be so much worse. God is holding me in the palm of His hands. Thanks to all for your continued prayers and support. I enjoy talking and I enjoy living life. I will do the best I can with what I have for who I can for as long as I can for the good of all. God bless.
Posted on: Tue, 20 Jan 2015 23:06:06 +0000
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