Today Brady is on day 110 and Charlee is on day 103. Charlee had her bone marrow test today. The doctors said she is doing so well! If it wasnt for Brady being here too, she would be free to leave right now. They expect for her bone marrow tests to come back with 100% donor cells again just like they were on her 60 day marrow. She did great! she was SUPER hungry for gold fish and apple juice after her procedure. She hardly took a breath between bites! Bradys results came back and he has 99-100% donor cells in his marrow. They always want 100%. His doctor feels confident that once he is fully weaned off some of his immune suppressant meds, that his will be at 100% as well. They will not get bone marrow aspirate tests again until their one year check ups unless they see a specific reason to. I still have not gotten a straight answer from Bradys doctor of when he can leave. He is being a little more cautious of him since he did experience some severe complications along the way. Which is ultimately a good thing. I do know that for sure we will be home by the first of November. However, I would like to go home in a couple of weeks if possible. When we are free to leave we will come back every two weeks until they are fully weaned off of a few of their meds. After that we will fly here monthly. We will also be in contact with a doctor near home incase anything should happen while we are away from St. Jude. These other pictures are of Bentley last week from his bone marrow test. We received the results. Unfortunately Bentley has Monosomy 7. Though we were not entirely surprised by this, it is still very discouraging and sad to say the least! We were praying and hoping for the best possible results for him. It is especially hard to receive the news right now when we are exhausted and in great need of a break from the cancer world. We are still relieved that we had him tested so now we can stay ahead of it. The good part about this is that at this point he only has it in 21% of his cells. To give you an idea of the range of severity, when Brady was diagnosed he had it in 98% of his cells and Charlee had it in 100% of hers. As of now, he does not have MDS. As I have explained before, Monosomy 7 causes MDS which is bone marrow failure. The failure can either create leukemia or just fail to make blood cells. Since he does not have MDS right now, this means that all his blood cells and counts are totally normal. Both Monosomy 7 and MDS progress over time. The only cure is a bone marrow transplant. I am still going to pray for a miracle though! You seriously would never know just by looking at him (or my other two). He appears perfectly healthy which is one of the most devastating things about this. I feel like I am taking my healthy kids to be pumped full of poison and foreign cells. At this point he will have a bone marrow aspirate every 4-6 months as well as blood work often to keep a very close eye on it. We know he will be treated before this turns into Leukemia. I have an appointment with his doctor on Friday to discuss what his medical future will look like. He met with a few other physicians to decide if they should put him on medication to slow down the progression of the Monosomy 7. They dont want it to progress too quickly because they dont like to transplant before the age of 3 if it is not absolutely necessary. When we came to St. Jude for the first time in March of this year, we were clueless as to how intense transplants were, and how many years of our kids lives we would be spending here. I think it is safe to say that Bentley is the final addition to the Treu family. I keep thinking how thankful I am that he was born before the kids were diagnosed because we may have decided not to have any more children. He completes us and we couldnt imagine our family without him! Prayers Please!!!
Posted on: Thu, 02 Oct 2014 04:56:31 +0000
Trending Topics
Recently Viewed Topics
© 2015