Today Duece ate 2 tsp of mashed potatoes, 1 tiny bite of a chicken strip and 12oz of apple juice. PRAISE GOD!!! We take a lot for granted. For some who may not know, Duece hasnt actually eaten and digested a meal since 6/12/13 (spaghetti). He has developed a fear of eating. In fact, hes actually terrified of eating for fear of getting sick or developing an infection if the food leaked out from the holes in his intestine into his abdominal cavity. For a period of time the physcians figured out a way for him to be able to go through the motions of eating in effort of him not to loose the desire to eat. He could eat for the taste, but anything that he ate didnt provide him with any nutritional value at all because everything he ate immediately and literally went into his mouth and straight to a bag that was connected to a drain that was placed into his stomach. Because the food had to pass through the drain for emptying, Deuce would have to chew his food almost to a liquid before swallowing. This became a habit, a way of life, dependence and a sense of security in order to prevent from getting sick. Now that he is able to eat, he is scared because hes still in the mindset of something going wrong. Hes also forgotten what some foods taste like and initially, he didntwant to eat and was frustrated because food now tasted nasty to him. Today was a challenge encouraging him to just TRY eating. He still wants to chew his food for extended amounts of time, and its the same way with drinking. He will hold it in his mouth for a long time before swallowing because hes afraid. Today while eating, he was so nervous about eating until he made himself sick & nauseated. He saw that everything was ok afterwards. Prayerfully, this will build his confidence, In hopes of being able to eat more as time goes on.The physcians are encouraging him to eat in efforts to keep the liver reproducing the bile thats necessary for his intestinal health and digestion. The goal is for him to be able to eat at least 2000 calories per day in order for him to get off of TPN (Total Parenteral Nutrition). TPN Is administered to him Interveneously 24 hours a day.The longer he stays on TPN increases the risk of damaging his kidneys in addition to the possibility of needing another bowel transplant that may or could result in him also needing a kidney transplant. Lets come In agreement before GOD regarding his fear of eating and the continued petition for healthy kidney function and the SEALING & HEALING of the fistulas/holes in his intestine. In JESUS Name! Amen. #progress
Posted on: Thu, 28 Aug 2014 04:45:05 +0000
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