Today Trinity had another episode similar to the one she had when we were in NYC. Her heart was racing and pulse was extremely high...in the 130s to be exact...which is high for a person with normal anatomy but for a person with 1/2 a heart that is super dangerous...especially if it stays there for extended periods of time! Trinity said that her heart felt like it was going to come out of her chest.... I was able to talk her down slowly with gentle words and calm breathing...I had to turn her oxygen up all the way and lay her down... she was so scared. I have to say that while I have many years of medical experience and knowledge...it is so different when it is your child! As I hooked her up to her pulse ox machine today at home I wanted to just cry...how can this little girl be so happy and filled with joy all of the time? I cant imagine the fear that must take over when she has these episodes...wondering constantly is this how I am going to die? Am I going to be ok? I pray daily that everything will work out and Trinity will be able to live a full life, and that she along with her brothers and sister can be together forever....how it was always intended to be....Trinity is a gift...today just smacked both my husband and I back into reality of just how sick our little girl is....God has great things planned for her...I just know it.....I am so thankful that today was not worse....please hug your kids extra tight for me....hugs everyone
Posted on: Thu, 18 Sep 2014 22:48:24 +0000
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