Update: Grace had physical therapy today and was able to leave the room in a stroller! We made a lap around the unit and asked her if she wanted to get back in bed or take another lap, she opted for another lap :) Tomorrow we are going to try to wean her isuprel for the 3rd time. This medicine helps with her pulmonary pressures caused by her Restrictive Cardiomyopathy; Every time we try to wean this medicine her new heart doesnt like it. The doctors say we should be able to successfully come off it soon. This is one of the main reasons we are still in the ICU. Grace has an appetite but she is still vomiting frequently :( Hopefully this will resolve quickly! Overall she is acting more and more like herself and the doctors say she is recovering at a normal pace. Thank you for all your support and prayers!!!
Posted on: Sat, 10 Jan 2015 03:18:31 +0000
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