Very excited for my Marfan friend, Simon Petrovčič, who will be - TopicsExpress

Very excited for my Marfan friend, Simon Petrovčič, who will be meeting with the President of the Republic of Slovenia to raise awareness of Marfan Syndrome! When: 07/29/2013 at 10 am. Where: The Presidential Palace Theme: Marfan syndrome and awareness Purpose: To inform the President of this rare syndrome, and present a vision of awareness the benefit of all patients and their help in raising awareness.

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