We are cautiously optimistic. We have found a clinical geneticist - TopicsExpress

We are cautiously optimistic. We have found a clinical geneticist who is also a Maternal Fetal medicine Dr who wants to take our case. Silas geneticist is sending over all his records today to see what testing we can get done on me before this baby is born. (short version: our insurance is more likely to cover ANY genetic testing when I am pregnant). We are also looking into options to get SOME of Silas equipment covered as we have been warned that our insurance does not like to cover a few things. Other than that, things remain the same. His Geneticist says if insurance denies the request for the blood test again, we will all be writing letters to our congressmen. So, anyone who wants to write on our behalf let me know!

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