We are delighted to recognize Heal EB and Jill and Eddie Vedder, lead singer of Pearl Jam, for their $50,000 donation to Dr. Alfred Lane’s groundbreaking research in Epidermolysis bullosa (EB). For children with EB, activities like playing at the playground or riding a bike are nearly impossible—even the slightest touch can cause skin to tear and blister. “Watching the impacts of this disease on our friend’s young son, and witnessing his incredible strength and resilience, motivates us every day to work toward funding and finding a cure,” says Jill. Thank you for your inspiring gift!
Posted on: Mon, 09 Jun 2014 17:51:00 +0000
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