We are home. Ben still has a long way to go. Since being home he - TopicsExpress

We are home. Ben still has a long way to go. Since being home he isnt eating well from the bottle like he was at the hospital. He was at least eating 1 oz on his own than getting an ounce by the feeding tube but that has decreased for some reason. He also is breathing very fast and hard again. I know he has tachypnea but he seems worse now. Monitoring him closely than seeing his Pediatrician on Monday and his Cardiologist on Tuesday. Than back to Dupont Thursday for chest xray and follow up with his surgeon.

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