We are home and extremely frustrated... Surgeon has not had chance to review the dye study jacob had yesterday and doesnt know when he will get chance! So in the meantime we have to resume pump feeds every night to help him gain weight as he has lost a pound in a month...waiting for surgeon to contact us he has theories as to why jacob is vomiting but doesnt want to discuss until he has reviewed the results. Jacob is doing ok but having had the button back in he is delicate and a bit precious about how you pick him up or cuddle him. I have to go back to hospital later today to pick up pump, tubes, milk and syringes etc what a nightmare! Glad to be home but unhappy with outcome so far. I have been overwhelmed with the support,love and comments from everyone thank you xxx
Posted on: Thu, 15 Jan 2015 09:56:04 +0000