We started the transfer process with Cleveland but its in Gods hands. I am interested to see what the new surgeon thinks. I joined a forum for people with challenges like Miles and it is interesting to hear about so many struggling with the issues Miles has and more. I was not aware. They are not put together one like the other but a lot of people struggle with feeding tubes, bowel troubles, etc....no responses to my bowel sepsis questions on 2 forums ????:( The responses I have received are all positive to go to Cleveland, even Miles original fetal surgeon was in favor. I was also told this morning the surgeon that phoned me is known as one of the best for challenges like Miles. Praying for an easy transition Godwilling. Miles is very stable still struggling with pain but no fevers and starting to have an appetite:) Thank you for praying for us!:)- Amy
Posted on: Tue, 02 Sep 2014 20:10:22 +0000
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