What a name - Myalgic encephalmylitus = ME It is heard of more & more nowdays....yet, still no real understanding of it nor help. It is a virus; it effects the immune system - sufferers are laid low a long long time - maybe never recoverng. Multiple issues effect the sufferer. Young people get it and cant continue their studies, High achievers often are forced out of their careers - it can strike down anybody, even children. It is also known as Chronic Fatigue Syndrome......but it is far more than feeling fatigued....memory, concentration, sleep, digestion, sensitivities to noise, light, foods, chemicals, can all be a part of it, effecting some people worse than others. Please dont put down someone suffering it - they may look just fine but what they are frrling is so complicated and debilitating. Give the complainer the benefit of the doubt. How can we know what a person is going through .... walk in my shoes one day.... we cant tell from outside appearence. Parents particularly must understand .....some think their daughter is bunging it on....it is not laziness but a critial and severe debility. It cuts down our participation in many ways - it is life altering. Diognises is a sloe process. A doctor will want to eliminate all other possible disorders before drawing the conclusion that his patient has ME. There are triggers causing its onset and these will show up in blood tests. The distressed, unwell, often depressed from feeling so low, needs comfort, support and understanding - not sharp, critical or impatient remarks or insensitive comments and pushing to get out and participate when probably rest is best, especially in early stages. Rest can help recovery. Please be kind. Its easy to be critical when you havent felt the devestating exhaustion and the myriad of other issues that often manifest themselves in time. Please be aware of what is ME/CFS.
Posted on: Sat, 16 Aug 2014 23:54:25 +0000
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