Woohoo!! We got fantastic news from Rylees main Dr! She was so incredibly pleased with all of her progress that we will start the process of coming off of 4 different medications... This is huge! (she is taking 8 pills in the morning and 5 at night now) she will eventually only take her main vasculitis medicine. We will not have to go back to Boston in three months like before but a whopping 6 months this time!!!! Mri in 3 months and continuing to monitor the kholers disease (the weird foot pain) as long as she continues to do well clinically we will continue the path to remission! God is so good!!!!!!! Prayer warriors continue to be awesome! I truly believe in the power of prayer and I watch it work everyday in my baby girl! She was so happy to have her big brother on the trip this time and hopefully he will get to go next time too bc school will be out :) so thank you again to everyone that has made the Boston trips possible from monetary donations and most importantly to the ones that pray for our family!!!!! We love you all!!
Posted on: Thu, 22 Jan 2015 00:32:06 +0000
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