Yesterday marked 16 months since Emilys strokes. I recently looked at the images of her brain again with a neurologist. She counted 5 strokes. 3 spread out across the back of her head, 1 on the left side, 1 on the brain stem. It is a miracle that Emily can have a conversation with me about something that happened when she was 4 years old. It is a miracle that Emily can tell me what ingredients she wants me to put into her veggie lasagna. It is a miracle that Emily is learning to write her numbers again. It is a miracle that Emily can look at a picture and recall details from it minutes later. It is a miracle that her speech is clear as day. She still has many limitations that will probably leave her unable to care for herself alone ever in her life. Last night during her bath, she had one of those moments where it all hit her again. Crying and rambling, Ive been this way too long. Its not fair for you and dad to have to give me baths, I should be able to do this myself. Im so sorry for smoking that sh**. I need to work harder. I cant believe I did this to myself. We try to turn those moments into motivation to keep going. Most days it seems like she is OK with how things are- I guess she has to be to be able to accept her daily life. Not being able to use the restroom herself, not being able to read a street sign, not being able to sit up in bed alone, not being able to sign her name. Health problems continue. Cortical blindness, an ankle that wont move, not being able to control her movements, not being able to have range of motion, not being able to directly grab something she is reaching for without feeling around aimlessly for it, epilepsy, a thyroid problem, hearing supersonicly so everyones conversations distract her in a crowded room. I feel its good to have moments like last night where she just breaks down and lets it all out. Its where the fire in her sets in and keeps her going and pushing through. 6 days of therapy this week. 5 days of school this week. Relearning how to play the basic Nintendo Gameboy. Listening to To Kill a Mockingbird on her audiobooks. Shes got a busy schedule, shes got to keep fighting forward. As always, thank you for your continued support. Im going to share the original CNN report from Feb 2013 in our next post.
Posted on: Tue, 08 Apr 2014 15:27:27 +0000
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