Your invited August 16th 6pm at the Alki Bakery 20809 72nd Ave S Kent WA Bob a 5 year old has been fighting cancer. This Luau is to help pay for his huge medical bills. $700,000 + please share Here is his story... Bob is a 5 year old little boy. He has Autism Spectrum disorder and is non-verbal. Doctors think he has Apraxia of Speech and are almost certain that Bob will be non-verbal all through his life. That is not the only ordeal Bob has been facing. During early part of 2013, Bob was in and out of clinics and the Emergency Rooms. Every doctors he sees says the same thing, hes coming down with the flu, he was a very sickly child. Then one day on June 29th 2013, we took him to Childrens Hospital in Seattle. Doctors ordered X-rays and ultrasound. Tests came back showing fluid in his hip bone. Bone doctor came in to talk to us and at one point, I felt very uncomfortable with all the questions he was asking, it felt like they were thinking child abuse is involve. I kept my cool and made sure they understood that I was as concerned as they were, and told them we are not leaving the hospital until they find out whats wrong with my son. More tests were ordered and finally after 14 hours of being there we got some answers. Something that we werent prepared to hear. The C word. The doctors came into the room and looked at me and my husband, held my hand and said. We think your son has Cancer. What, wait a minute, are you sure its my son, William Sakisat, I ask the doctor. And he just looked at me and said yes. Im sorry. From there on, the C word changed our entire lives. On July 2nd, 2014 Bob was diagnosed with Stage 4, High Risk Neuroblastoma. He went through 6 rounds of Chemotherapy, 7hr operation for a Tumor removal. Bone Marrow Transplant, 12 Rounds of radiation. We are now doing Antibody/Immunotherapy Treatment that lasts for six months. On July 27th, 2014, Bob was declared to be in remission. Although hes in remission, we still have to finish his treatment to give him a better chance staying in remission. Neuroblastoma has a very high relapse rate. There is no known cure, everything my son and any other Neuroblastoma child goes through is a Study, medicines used are still on clinical trial. It has been a very long, stressful 14 months. Weve been striving financially since my husband is the only one whose working. He works two part time jobs. Numerous times he couldnt work, because Bob got so sick he that he had to be hospitalized and my husband had to stay home with our girls, ages 6 and 14. And those days hurt us financially since theyre all leave without pay. We are lucky to have such great insurance coverage from my husbands work, but our copay eventually piled up. We are blessed to have such wonderful friends and family, we dont know where or how we would ever pull through without them. Bobs treatment goes through October, then we will do another scan for re-staging. If all goes well and hes still in remission. He will go to surgery to take out his central line. And we will continue to do scans every three months. If the scan shows evidence of the cancer then a new treatment protocol will be suggested by his Oncologist. I pray my son will stay in remission so he can have a chance to enjoy just being a kid. A special Autistic little boy.
Posted on: Sat, 16 Aug 2014 02:29:42 +0000
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