.... everyone has a story. We could not have had a more positive experience traveling to and from Boston and everything in between. Strangers were so interested in Cammy and approached us to say hi and learn about Cammy (I told you approaching us with compliments helped :)) We are constantly reminded of kind hearts of strangers and that Cammy brings out the good in people. Cammys Chicago Blackhawks blanket was a great ice breaker! If you know us, we are usually wearing a team shirt like Cammy Cammy Can or in this case, I was wearing my Proud Mom shirt and grandpa B was wearing his Proud Grandpa shirt with a wheelchair making up the o in Proud. We handed out so many of Cammys business cards which gives a description of Cammy and Rett syndrome, along with our F/b page and Rettsyndrome.org website to learn more. While we were waiting to preboard our Southwest Airlines flight, the Southwest agent checking tickets came up to us to meet Cammy and tell us how amazing shes being (our flight was delayed 40 minutes). While we were telling her all about Cammy, I kept noticing the first couple of people in the A check in line listening and smiling at us. There was a young red headed man who I saw typing on his phone, but looking up at his smiling. I was speaking to Cammy when I felt a tap on my shoulder and it was the red headed man. He had a big smile on his face and showed me the screen of his phone. (HERE IS YOUR TISSUE ALERT!) It read... HI. I love your shirt. My name is Eric. I have ALS. Go Cammy! Go Hawks! I looked up with tears in my eyes and gave him a huge hug. He pointed to Cammys card where it read I talk with my eyes and then typed that will be me, too, someday. He pointed to Cammys card where it read I cannot walk, talk or use my hands, but I hear you. I am smart, smiled and nodded. And I replied You know exactly how Cammy feels. We continued to chat for 20 minutes like we were old friends. Meeting Eric was the highlight of my Boston trip. Eric is in a clinical trial through UMASS with stem cells. There were 6000 applicants and hes one 48 patients in the study. Up until yesterday I had only read about ALS. Last night, I met a truly remarkable young man not giving up and living life.... smiling and joking around. PLEASE follow Erics journey on Fight Like a Champion. .... everyone has a story.
Posted on: Wed, 15 Oct 2014 16:32:11 +0000
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