in this world we have to take chances, sometimes theyre worth it and sometimes theyre not, but im telling you now, you will never know until you try. Kevin has been back at Spaulding Charlestown for about two weeks now. He got hit pretty bad and quickly with an infection which knocked him out. The plan is to have him on an extended period of antibiotics which will be tapered over 7 weeks. Things have been relatively quite for Kevin over these past weeks. It takes some time for him to bounce back from an infection. I say quite but it has been far from that. Although he wasnt answering commands or doing his best with therapy he has been extremely aggressive. This has been the most aggressive Ive seen him. Every time you walk into his room you might as well tie on the boxing gloves. He has a mean left hook followed by a right smack. And his grip...forget about it. If he has you, you better know how to talk him out of the choke hold. The good is that he can be talked out of it. When talking him out of any grip it seems he has a look like I know I was an asshole and releases his grip but then 3mins later (short term memory loss) he forgets and youre back in the ring. Kevins been confined to his room because of the infection and hasnt been up in his wheelchair much. He still gets up daily but its more 1-3hrs where before it was up to 6-7hrs. Because hes on precautions hes not allowed to use any of the therapeutic equipment. Hopefully soon the precautions will be lifted so hes able to utilize more. Today was an amazing day with Kevin. Im excited thinking about it but unless you were there I cant explain how awesome he did. I was speaking to OT and said I wish I had it on video to show how well he did. Let me try to explain it. During OT today he seemed on target with about 80% (give or take) of what was asked of him. He was trying so hard. Some of the things asked of him was to straighten his legs and overcome the tone, which was pulling his legs back up. Turn your head left, right, center. All of this he had to be talked through but in the end he was successful. He was asked to wipe the drool off his mouth. A couple of times he went to his head or nose but again once he was talked through it he made it to his mouth. His nurse even got a loud yeah from him today. She was asking if he was in pain and he just stared at her but then she said Kevin are you comfortable. He took a big breathe and exhaled a loud yeah. As I was leaving today I said bye Kevin can I get a wave. I didnt get a wave but he put his fist straight out to me to give me a fist bump. I said blow it up and I gave him a fist bump with a blow up (ha if thats even what you call it). I said Kev blow it up and I gave him a fist bump again...he blew it up. Shit you not!!! The little things that make me happy :) Those that have been following for some time now know Ive been fighting for a particular med (apomorphine) to treat Kevin. Its been since December that Im been persistent (or nagging) for someone to please try it. My wish has been granted and Kevin will be treated with this medication. The med was supposed to be administered this past Monday but unfortunately it got held up by insurance. Its approved but the proper paperwork needs to be submitted. I signed a consent form last Friday saying I understand the risks and have spoken with the Doctors. This is new for everyone at Spaulding with the exception of one Doctor. They will all be coached through this and will follow Kevin closely. Some are as excited as I am and others not so much. I am not saying this is a medication that WILL help Kevin. What I have found through research trials is that this medication has helped about 8/10 patients recover to a normal life. I need to know that I gave Kevin every shot at a normal life and if this medication helped others then why cant Kevin have that same chance at a normal life. This may not help him but I need to know as Kevins wife, in the end, I tried everything for him. In life we cant be afraid to take risks. Whatever that risk may be whether you win or lose you should be able to say at least I tried. May be its right...may be its wrong but I want that answer and cant settle for the what ifs. I want my husband back...I want my boys daddy back! No matter how many mountains I need to climb and however long it may take every avenue will be explored for Kevin. I look forward to updating everyone after hes treated with the apomorphine. Thank you all for the continued prayer, love and support xo
Posted on: Thu, 21 Aug 2014 01:32:31 +0000
Trending Topics
Recently Viewed Topics
© 2015