question for those with ME &/or POTs who are also utilizing heart monitors to guide safe activity levels. i started fludrocortisone about a week ago. titrating in & now at the .1mg. not seeing much difference in POTS symptoms. i have been experimenting with different electrolyte mixes & approaches to volume loading. lately i have been drinking 16 oz of water with mix before i get up. i back off of the electrolytes later in the day as i heard it can be an issue for those of us not on our feet much. (taking the fludrocortisone in the morning. the heart rate seems more stable at night. but that has been the case since getting the watch) trying to get a sense of how much of this is ME & how much is POTS driven. yesterday my rate was all over the place. that includes drops. very very unstable. but i am sleeping better & dont know if that is coincidence. or if this is somehow giving me some stability during the night & thus preventing wake-ups feeling hot, etc). of course, it may be from more difficult ME condition this week as well... any thoughts?
Posted on: Fri, 26 Sep 2014 13:54:51 +0000
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