ushersyndrome.net/ 45,000 + of us are living in the US with Usher Syndrome. Usher Syndrome: /ˈəSHər ˈsinˌdrōm/ noun. A genetic condition that causes deafness and blindness. It is the leading cause of deaf-blindness. While many of us have been given the gift of hearing thanks to hearing aids and cochlear implants, none of us have effective treatments for blindness. We want to gain independence by being able to drive to many destinations on our own, but we cant because of our vision loss. Many of us struggle to see at night and cant see the stars to appreciate the big universe we have out there. The world has so many magnificient scenes to offer us - waterfalls, beaches, sunsets, mountains, rainbows, etc. We fear that we wont be able to continue to see our beautiful planet if we dont receive treatments for our eyesight. Usher Syndrome is woefully underfunded. https://docs.google/document/d/1bT7jvst6WoFtt2QC6R24P3yk1ST-kuMUIZjBwbc-kyo/edit?usp=sharing
Posted on: Wed, 29 Jan 2014 07:10:18 +0000
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