1/5/15 7:57pm (est.) Update: Today has been a pretty productive day! First, Tiff got her drain tube removed because theres no more stuff oozing out, the infection is clearing! Also, there are 3 panel meetings happening via the internet between Tiffs team of doctors here at MUSC and doctors from hospitals all over the world! They are discussing her rare tumor & the suggestions for treatment plans. These doctors are from all over, Harvard, Stanford, St. Jude, Columbia University, Mayo Clinic, all the big hospitals! They all have firstly agreed to finally having a PICC line put in, its used to give treatments such as chemotherapy, blood transfusions, antibiotics, intravenous (IV) fluids and liquid food if she were unable to eat. It can also be used to take samples of blood for tests, so not as many needles poking her all the time. The panels will meet again tomorrow, and again on Wednesday, then hopefully we will know and have a treatment plan.The next good news is Tiffany is going to be transferred by helicopter to Levine Childrens Hospital in Charlotte, North Carolina into their inpatient pediatric rehabilitation unit to help her with the functions she has lost later this week. They specialize in spinal cord & brain injuries, inpatient pediatric rehabilitation specialties include pediatric rehabilitative medicine, specialized nursing care, pediatric physical therapy, occupational therapy, speech therapy, recreational therapy, cognitive education, psychological treatment and has social workers on hand to help with any issues that may arise. We hate that she will be farther away, but this is a great place to be for her to recover! We will make it work! The family will have to have gas to drive out of state to visit, and stay in a hotel while she is there, and have food. The doctors are thinking 2-3 weeks there, then hopefully home!?! Thank you all who have donated, shared, called, visited, sent cards, prayed, sent kind words of encouragement! I dont know what we would do without all of you! Lets hope & pray these next couple weeks will be the last stretch of Tiffs journey, she is a fighter! She can beat this! Please continue to give a little if you can to help out so she wont be there alone, the family wants to stay as much as they can! Donate, share, pray, love! #TeamTiffany #BeatingCancerIn2015 #NeurofibromatosisAwareness
Posted on: Tue, 06 Jan 2015 01:29:25 +0000
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